Raven was diagnosed with SMA
This is a life limiting disease with no cure or treatment. She will however, be seeing doctors often, receive physical and occupational therapy, as well seeing a devopmental specialist. As time passes, even with these therapies, her muscles will become weaker, breathing will become a problem. She sees a neuroligist, pulmonologist in Charleston. The Muscular Dystrophy Association in Roanoke will also play a part in her care. Depending on her response to the therapy, her life expectancy is 18 to 36 months.
Raven is the youngest of four children in the Perdue family; Tiffany, Clinton, Carter, Lizzie and Wyatt round out the family. There will be many expenses above and beyond what insurance will cover. Visits to Charleston and Roanoke are an all day ordeal. Gas, food, tolls. The familys needs transportation that will hold the family and all their gear. A wheelchair equipped van will likely be needed. Along with the van Raven will most likely require a hospital grade suction machine, a cough assist, and bipap machine.Tiffany is a stay at home mom since the birth of Raven.
Clinton and Tiffany greatest desire is to have quality time with Raven, to create memories for her siblings and them. They have not asked for any assistance but as a grandmother who lost a granddaughter at 8 months I know they will have many financial needs and above all your prayers. This GoFundMe account has be set up as a way for you to help financially. If you choose not to for whatever reason, please keep Raven and her family in your prayers. Look for updates to see how Raven is doing